FeaturedActive 4 days agoStaying hydrated with CFThe weather is heating up! How do you make sure that you or your little CFer avoid dehydration while still having fun? Share your tips below!...Reactions0reactionsComments4 repliesWeather
FeaturedConnecting with Other CFersLet's talk about those CF connections! Do you feel like it is easier to talk about your disease with others that also have CF? How do you find others with...Reactions0reactionsComments25 replies
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Best centers for Atypical Adult Onset DiagnosisI am a 50 year old with gradual symptoms of CF and a genetic sequencing test showing 2 extremely rare genes that could be indicative of CF, but requires further...Reactions0reactionsComments1 repliesDiagnosisTips & AdviceResearch & Clinical Trials
CF In the elderlyI am newly diagnosed at 69 years old. I’m angry and happy and so emotional. Anyone my age with CF?...Reactions0reactionsComments14 repliesAwareness
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cystic fibrosis and celiac diseasePlease help. My 20 year old daughter has CF and celiac but is struggling with digestive issues. The availability of creon 35 has impacted her negatively. She can only get...Reactions0reactionsComments4 repliesGI Symptoms
My son Joshua Cf took my beloved child at 27 yrs 8 yrs ago. I still suffer & cry....Reactions0reactionsComments1 replies
Creon availabilityHi all. In South Africa some of us are beginning to hear rumblings about a shortage of Creon. Are people in South Africa and around the world experiencing problems? What...Reactions0reactionsComments2 repliesCopingTips & AdviceMental Health
Diagnosis ShockI have recently been diagnosed with late onset CF. I spent the first week trying to get my head around the news. I am receiving excellent care and navigating my...Reactions0reactionsComments1 replies
What are some tips to gain weight on TrikaftaHello everybody! So I have a rare mutation that Trikafta wasn’t approved for, but my doctor took a chance on me and I’m so glad he did!! My health has...Reactions0reactionsComments1 repliesDiet & Nutrition