Trikafta coverage Hi. I'm on Trikafta and since my job changed prescription plans, my Trikafta is a 4000.00 copay. I have good health insurance and had Benecard for my prescriptions and only...Reactions 0 reactions Comments0 repliesTrikaftaCost
Getting older with cfI'm nearly 46 Every1 is talking about my 50th The doc told my dad when I was born she won't get to 5 yrs Now we have the magic pills...Reactions 0 reactions Comments26 replies
Has anyone ever experienced being left out of a will because you had CF?Has anyone ever been left out of inheriting anything because you have CF and your relative believe "your just going to pass away any way" or "they aren't long for...Reactions 0 reactions Comments0 repliesCopingCostDepression
Disruptive Behavior 11 year old granddaughter has over the course of the last year developed narcissistic and disruptive behavior. In some cases hurting others in her class Discipline is not helping curb...Reactions 0 reactions Comments3 replies
CF In the elderlyI am newly diagnosed at 69 years old. I’m angry and happy and so emotional. Anyone my age with CF?...Reactions 0 reactions Comments14 repliesAwareness
CF GutHi All, I am 61 years old, diagnosed with CF at age 5 and am 20 years post bilateral lung transplant. I have struggled with my gut my whole life...Reactions 0 reactions Comments2 repliesCoping
ConstipationCan anyone help me with how many Creon 36000 they take with meals and snacks. I’ve noticed severe constipation the past year or so. Maybe it’s the trikafta or me...Reactions 0 reactions Comments5 replies
What type of articles are you interested in seeing more of?Are there any CF-related topics you want to learn more about? Let us know by sharing here....Reactions 0 reactions Comments1 replies
SupportI need to talk to someone badly, i was out with my support worker it was freezing cold i forgot to put my oxygen on and didnt get wnough time...Reactions 0 reactions Comments11 repliesDepression
Bronchoscopy--what to expect?Hi everyone, I am having a bronchoscopy done to get a better idea of what is happening in my lungs following a CT scan. Have you had one done? What...Reactions 0 reactions Comments1 repliesDaily TreatmentSymptoms