FeaturedStaying hydrated with CFThe weather is heating up! How do you make sure that you or your little CFer avoid dehydration while still having fun? Share your tips below!...Reactions 0 reactions Comments3 repliesWeather
FeaturedConnecting with Other CFersLet's talk about those CF connections! Do you feel like it is easier to talk about your disease with others that also have CF? How do you find others with...Reactions 0 reactions Comments25 replies
Active 6 days agoHow Old Were You When You Were Diagnosed?I'm just curious because I was diagnosed when I was only 6 months old, but my brother was diagnosed at 4. So, when were you (or your loved one) diagnosed...Reactions 0 reactions Comments0 repliesDiagnosis
Carriers pain, cramping, gas, and constipation diarrhoea kidneys and duct inflamationMy elderly parent in the family with CF ( but has never been tested for carrier status ) As I understand it CF carriers, especially the elderly pancreas do not...Reactions 0 reactions Comments0 repliesGI SymptomsCarriers
I wonder how many people are carriers & only find out after genetic testing during pregnancy?I have had asthma, eczema & allergies from an early age. My brother has asthma & seasonal allergies. My sister was diagnosed with CF only when she was in her...Reactions 0 reactions Comments0 repliesCarriers
Tilting therapy bed for physio for CFI have a tilting bed supplied specifically for CF physio, but my boys only used it twice as they preferred the wedge on the floor. If anyone would like it...Reactions 0 reactions Comments0 repliesDaily Treatment
Hello everyone, I'm a Respiratory Therapist and wanted to check in.Good afternoon, I'm a long-time therapist in middle TN, and I've had the privilege of taking care of many patients with cystic fibrosis over the years. My first experiences with...Reactions 0 reactions Comments0 repliesHealthcare Team
General friendly question.How is everyone doing?...Reactions 0 reactions Comments1 repliesCopingFriends & FamilyWork & Employment
New to Trikafta-please respondHi. I just started taking Trikafta a week ago after the sickest year of my life. I started it while on levaquin and doxy. I culture pseudomonas and recently had...Reactions 0 reactions Comments2 repliesTrikafta
when a cf child reaches 18 and transitions into being an adultMy husband and I would love to hear from parents/caregivers with a CF child transitioning into the adult world. We are nervous about all the changes we're facing. Insurance is...Reactions 0 reactions Comments1 repliesCaregiving
Trikfta side effects I’ve been on Trikfta since 2019 and I’ve developed cataracts on both eyes. I’m 41 years old which I was told this normally happens in children, adolescents, and young adults...Reactions 0 reactions Comments14 repliesLung TransplantTrikaftaTips & Advice
Will you take our In America survey and help others understand the true impact of cystic fibrosis?The In America survey is now closed. To better understand the patient experience and realities of living with cystic fibrosis, we are fielding our Cystic Fibrosis In America survey. By...Reactions 0 reactions Comments0 repliesAwareness