CF and SmellHas CF impacted your or your loved one's sense of smell? Share your experiences with smell in this thread....Reactions 0 reactions Comments2 repliesSymptoms
Muscle aches & weaknessJust wondering if anyone here , experiences very painful and sore muscles, I have been having alot of muscle pain in my shoulders, and sides especially My shoulde blades are...Reactions 0 reactions Comments5 repliesTips & Advice
Muscle weakness and crampingAnyone else suffering with muscle weakness and cramping and leg muscle twitches... It's hard exercising when your lungs are saying no but your mind is like yes & barely sleeping...Reactions 0 reactions Comments0 repliesTips & AdviceSleep
New port in my armAnyone else find them really uncomfortable 😣 and itchy? I've had mine over a month and I've had pain in my arm and chest on and off not to mention...Reactions 0 reactions Comments0 repliesPortsSide EffectsTips & Advice
Medicine in IsraelDoes anyone know if Pulmozyme and TOBI are available for sale in Israel? Any idea of cost since will be paying out of pocket....Reactions 0 reactions Comments0 repliesCost
excess gasSince starting Trikafta, it seems like I have excess gas and I mean LOTS of excess gas to the point that me and my husband are not sleeping in the...Reactions 0 reactions Comments2 replies
Moving to the US with Cystic FibrosisHi, I am a 28 year old female from the UK hoping to move to Florida next year to be with my long term partner. I feel like a fish...Reactions 0 reactions Comments2 repliesCostDaily TreatmentHealthcare Team
TrikaftaTrikafta nearly killed me. Inside of 3 months I was in total liver failure. I was in and out of the hospital 5 times before going in and staying 42...Reactions 0 reactions Comments2 repliesMental HealthSide EffectsTrikafta
FeaturedBeing a Parent with CFManaging a chronic illness can be a lot of work, but adding children to the mix makes it even harder. What is it like to be a parent with CF?...Reactions 0 reactions Comments8 repliesCaregiving