FeaturedBeing a Parent with CFManaging a chronic illness can be a lot of work, but adding children to the mix makes it even harder. What is it like to be a parent with CF?...Reactions 0 reactions Comments8 repliesCaregiving
Vibrating Mesh Nebulizers & Hypertonic Saline?Howdy. I've been trying to find info from CFers regarding using these vibrating mesh nebulizers with Hypertonic Saline (7%). Anyone use these or have knowledge on which ones work/don't work...Reactions 0 reactions Comments0 repliesDaily Treatment
Teaching Children Self-Management SkillsTeaching young children the skills to manage their CF is imperative for their growth. If you have young children with CF, share tips on ways you've taught them how to...Reactions 0 reactions Comments3 replies
Kaftrio and stomach painWhen my daughter forgets to take her Kaftrio she gets bad stomach pains. Is this common?...Reactions 0 reactions Comments2 replies
FeaturedTrikafta side effectsI’m a 58 yr old female. I started Trikafta 10 months ago. It has helped diminished my cough completely but I’ve started with a lot of other symptoms. I have...Reactions 0 reactions Comments21 repliesTrikafta
Orkambi or Trikafta?Hello, My 14-year-old son has cystic fibrosis. Soon, in Romania, we will benefit from Orkambi and Trikafta medicines. From your experience, do we need to start with Orkambi and then...Reactions 0 reactions Comments2 repliesDaily TreatmentTrikaftaHealthcare Team
Motivation while constantly getting sickI've been trying to gain some muscle mass, and made encouraging progress. I have a very small stature for a male at 5ft2 19 years with the bone density half...Reactions 0 reactions Comments7 repliesMental HealthTips & AdviceDepression
How has CF impacted your decision to become a parent?CF can impact the ability to conceive children. How did this affect your decisions about conception? Did you pursue alternative methods or choose not to become a parent?...Reactions 0 reactions Comments0 repliesFriends & Family
Five Feet ApartWhile some people loved the movie Five Feet Apart, others were not as impressed. What did you think of this movie? Share your thoughts in the forum. ...Reactions 0 reactions Comments4 repliesAwareness
CF CarrierHi, I’m a CF carrier, I found out 5 years ago when attempting to donate some eggs! I have since had 2 children, no1 (boy) not a CF carrier but...Reactions 0 reactions Comments3 repliesCarriers