Survivor’s GuiltOne of the hardest aspects of having CF is outliving the friends you make with CF. I know I fight mentally with...reactionscomments
Cystic-Fibrosis.com Community Year In ReviewSince Health Union (the parent company of Cystic-Fibrosis.com) launched this online community, our goal has always been to elevate the voices of...reactionscomments
CF While Being A MinorityOne thing I was told many, many times by various pulmonologists is CF is a “caucasian” disease. It’s primarily a disease you...reactionscomments
Choosing To LiveI have always been a very cautious person, but having cystic fibrosis has made me more anxious over the years. As I...reactionscomments
College and Cystic FibrosisOne of the best things about growing up and finishing high school is the excitement of going to college. It was a...reactionscomments
Celebrating The Benefits Of Exercise With TrikaftaLet’s talk about exercising with cystic fibrosis. (Soft groan from the peanut gallery). Everyone’s aware of how important it is for both...reactionscomments
Musical Chest PT for CF, or How I Bond with My SonAlthough not by design, music – singing, really – has played a big role in my relationship with my children. Singing or...reactions1comment
Becoming Mom: My Path to CF Motherhood (Part 1)I distinctly remember the day I realized cystic fibrosis was the reason I wouldn’t go through pregnancy and become a mom. This...reactionscomments
CF and Yeast InfectionsCandida is a yeast, a type of fungus, that inhabits the normal flora in humans. However, overgrowth of candida can result in...reactionscomments
Painful TruthThere’s a topic I usually don’t talk about because it was hard to come to terms with it. I found courage and...reactions2comments
Storing CF Medication On The GoAs a busy mother, I spend a lot of time multitasking and rushing out the door to some engagement or errand I...reactionscomments
Sorting Out Hopes and DreamsRoughly 10 years ago, while at a CF Foundation event during the “My Dream” campaign, a writer for the Foundation asked me...reactionscomments
Part One: Growing Up in the HospitalI grew up being hospitalized 2-4 times a year. Typically, it was for a lung infection or gastrointestinal issue. Hospital stays lasted...reactions2comments
Part Two: Preparing for the HospitalIf only “hospital knowledge” could be used on my resume. I have cystic fibrosis and spent a lot of time growing up...reactionscomments
Tips for Managing Pre-Clinic Day AnxietyI am writing this article now in the wake of having my clinic visit a few days ago. And, let me preface...reactionscomments
Ten Ways to Support a Loved One With CFSupporting someone you love with cystic fibrosis is a great way to show how much you care and value their experience living...reactionscomments
Relationships with Cystic FibrosisI believe that having relationships and falling in love is very important for every person, but it’s harder to navigate when you...reactionscomments
Sick All By MyselfIt’s stressful being sick with a genetic disease that causes a wide range of chronic symptoms. It’s even harder being the only...reactionscomments
Can I Keep Working? When It's Time To Take A Step BackI’m a very motivated individual. I always ran for every board, committee, or leadership position I could. I starting working young. I...reactionscomments
The CF Sibling RelationshipRight now my kids are outside playing together in the sprinkler. I hear them laughing and having a great time out there...reactions3comments
