Day In the Life of Someone with Chronic PainChronic pain is a close friend of cystic fibrosis - a particularly unwanted friend, that is. Although chronic pain is a relatively common complication of CF, it is not an...reactionscomments
We Will Always Celebrate CF Awareness MonthHappy Cystic Fibrosis Awareness Month! It’s a special month for the CF community filled with advocacy and spotlighting our experiences. Although CF awareness month will be slightly different this year...reactionscomments
Day In The Life Of A CF Tune-UpWhen living with cystic fibrosis, occasional worsening of CF symptoms is all too common. So common in fact, treating a flare of symptoms has a nickname in the cystic fibrosis...reactionscomments
His fight is my fightI met my boyfriend in college almost 2 years ago. I always wondered why he cleared his throat so often and why he would make me wait in the living...reactions4comments
Friends for lifeI have CF and also grew up with a friend that has CF. We lived in a small town of about 2,400 people. It's a kind of town where everyone...reactionscomments
Cystic Fibrosis BabesI am the proud mama to Karlee, 15, and Maximus, 14, who both have Cystic Fibrosis. CF has never defined who they are, rather given them the strength to persevere...reactionscomments
The (Virtual) Doctor Is In! Sharing Telehealth ExperiencesAs the COVID-19 pandemic continues, telehealth is being used by more and more people. Telehealth is also sometimes called telemedicine or virtual care. Whether you have been using telehealth for...reactionscomments
Relationships with Cystic FibrosisI believe that having relationships and falling in love is very important for every person, but it’s harder to navigate when you have an illness that can shorten your life...reactionscomments
Social Distancing Spurs Telehealth SurgeThe technology needed for virtual healthcare has been around for decades. But virtual care has not been widely used in the United States until recently. The recent public health emergency...reactionscomments
Thank You for Taking Our Survey!We appreciate you taking the time to answer all of our questions. Your responses will help us better understand life with cystic fibrosis. New here? We invite you to explore...reactionscomments
How to Monitor Your Health with At-Home DevicesAt-home monitoring can help you better manage chronic health conditions. It can also aid in your recovery after medical procedures. Using this technology, you can regularly record your health data...reactionscomments
A Thank You To All the Moms With Adult CF ChildrenTo All the Moms with Adult CF Children: Present from the very beginning, this is a thank you to all the moms with adult CF children. The ones who faced...reactionscomments
Privacy Concerns When Going VirtualTelehealth has become a popular way to see a doctor. Today, you can get many health services remotely. And, some studies show you may get better care at a lower...reactionscomments
Where to Find Telehealth ServicesIt can be overwhelming to figure out how to find telehealth services, especially if you do not already have a doctor. But many companies offer a range of virtual health...reactionscomments
Services You Can Get Through TelehealthTelehealth or virtual care can be used to access many different types of health services. To get started, talk to your doctor to find out which virtual services are right...reactionscomments
Five CF-Related Spring Cleaning Tasks To Add To Your To-Do ListSpring is here! We made it! The snow is melted, revealing green grass (hopefully), birds are chirping, flowers are blooming, and the days are growing longer. With spring making its arrival...reactionscomments
Prednisone FaceHaving cystic fibrosis involves taking so many medications and, unfortunately, each and every one of them has side effects. Each one takes its toll on us and leaves a mark...reactionscomments
Preparing for a Virtual Visit with Your DoctorVisiting your doctor online is a great way to get healthcare if you are not able to go in person. You can get medical advice, visual assessments, treatments, or update...reactionscomments
Becoming Mom: My Path to CF Motherhood (Part 1)I distinctly remember the day I realized cystic fibrosis was the reason I wouldn’t go through pregnancy and become a mom. This realization came as a result of a summer...reactionscomments
Telehealth 101: How to Visit Your Doctor OnlineTelehealth is a virtual service that lets patients interact with a healthcare professional online. This lets doctors and patients connect without being in the same room, or even the same...reactionscomments
