Planning for Motherhood: Practical ConsiderationsIn part one of this series, I shared some considerations to take into account before deciding to conceive with cystic fibrosis. Focusing mostly on health, they included: maximizing health status... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
6 Month Trikafta Update (Part 1)Six months ago I began taking Trikafta--a life-changing treatment for cystic fibrosis. While Trikafta is not a cure, I affectionately refer to it as my “silver bullet.” I’ve noticed so... By Kynsie Riedel4 min readBookmark for laterReactions 0 reactions Comments0 comments
How Has CF Affected Your Hobbies & Passions?If you or a loved one has CF, you probably know that it can dictate what types of hobbies we can have. We asked our advocate team, "How has CF... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
The CF Sibling RelationshipRight now my kids are outside playing together in the sprinkler. I hear them laughing and having a great time out there. They are two years apart and, while they... By Misty Roussa3 min readBookmark for laterReactions 0 reactions Comments3 comments
My Pet is a Part of My CF CareApart from the fun and joy animals bring us, animals can also be natural healers, especially when we welcome them into our homes. There’s growing research showing pet ownership has... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
InsomniaInsomnia is so common with cystic fibrosis (CF). I find it a miracle when I can sleep for more than 4 to 5 hours at a time. Some days even... By Marieliz Landa2 min readBookmark for laterReactions 0 reactions Comments0 comments
Planning for Motherhood: Health ConsiderationsAs people with cystic fibrosis continue to live longer and healthier lives, adult milestones are becoming more attainable. For the first time, many men and women with CF are considering... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Decision To PortOne of the difficult things about having CF is home infusions and or hospital stays. For me, hospital stays usually last a week or more. During admissions, there’s a constant... By Marieliz Landa3 min readBookmark for laterReactions 0 reactions Comments0 comments
Day In the Life of Someone with Chronic PainChronic pain is a close friend of cystic fibrosis - a particularly unwanted friend, that is. Although chronic pain is a relatively common complication of CF, it is not an... By Janeil Whitworth4 min readBookmark for laterReactions 0 reactions Comments0 comments
We Will Always Celebrate CF Awareness MonthHappy Cystic Fibrosis Awareness Month! It’s a special month for the CF community filled with advocacy and spotlighting our experiences. Although CF awareness month will be slightly different this year... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Day In The Life Of A CF Tune-UpWhen living with cystic fibrosis, occasional worsening of CF symptoms is all too common. So common in fact, treating a flare of symptoms has a nickname in the cystic fibrosis... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
His fight is my fightI met my boyfriend in college almost 2 years ago. I always wondered why he cleared his throat so often and why he would make me wait in the living... By 310drh1 min readBookmark for laterReactions 0 reactions Comments4 comments
Friends for lifeI have CF and also grew up with a friend that has CF. We lived in a small town of about 2,400 people. It's a kind of town where everyone... By rixter19852 min readBookmark for laterReactions 0 reactions Comments0 comments
Cystic Fibrosis BabesI am the proud mama to Karlee, 15, and Maximus, 14, who both have Cystic Fibrosis. CF has never defined who they are, rather given them the strength to persevere... By mbreilly1 min readBookmark for laterReactions 0 reactions Comments0 comments
The (Virtual) Doctor Is In! Sharing Telehealth ExperiencesAs the COVID-19 pandemic continues, telehealth is being used by more and more people. Telehealth is also sometimes called telemedicine or virtual care. Whether you have been using telehealth for... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
Relationships with Cystic FibrosisI believe that having relationships and falling in love is very important for every person, but it’s harder to navigate when you have an illness that can shorten your life... By Marieliz Landa2 min readBookmark for laterReactions 0 reactions Comments0 comments
Social Distancing Spurs Telehealth SurgeThe technology needed for virtual healthcare has been around for decades. But virtual care has not been widely used in the United States until recently. The recent public health emergency... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Thank You for Taking Our Survey!We appreciate you taking the time to answer all of our questions. Your responses will help us better understand life with cystic fibrosis. New here? We invite you to explore... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
How to Monitor Your Health with At-Home DevicesAt-home monitoring can help you better manage chronic health conditions. It can also aid in your recovery after medical procedures. Using this technology, you can regularly record your health data... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
A Thank You To All the Moms With Adult CF ChildrenTo All the Moms with Adult CF Children: Present from the very beginning, this is a thank you to all the moms with adult CF children. The ones who faced... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments