Owning My Trikafta Weight GainWhen I began taking Trikafta at the end of last year, I saw the scale do something I have never seen before--continually...reactions3comments
Take the Connected Health Survey!The Connected Health Survey is now closed. Thank you for your interest!In the digital age, there are so many devices, websites, and...reactionscomments
Choosing To LiveI have always been a very cautious person, but having cystic fibrosis has made me more anxious over the years. As I...reactionscomments
CF and Infertility After Pregnancy*Trigger warning: This article topic involves pregnancy, infertility, and mildly graphic descriptions of cystic fibrosis-related medical issues including hemoptysis. My pregnancy with...reactionscomments
College and Cystic FibrosisOne of the best things about growing up and finishing high school is the excitement of going to college. It was a...reactionscomments
Celebrating The Benefits Of Exercise With TrikaftaLet’s talk about exercising with cystic fibrosis. (Soft groan from the peanut gallery). Everyone’s aware of how important it is for both...reactionscomments
Life with CF: An Interview and InsightOur current life events in shutdown and quarantine remind me how twenty-five years ago when my son was diagnosed with cystic fibrosis...reactionscomments
My CF Outlook On Life With ModulatorsIn January 1990, my parents sat staring anxiously at the person with a Ph.D. who was breaking the news; your beautiful baby...reactionscomments
Relearning Treatment Compliance After TrikaftaIn my teenage years, I struggled heavily with CF treatment compliance. I had a very laid-back approach to my health that bordered...reactions1comment
Painful TruthThere’s a topic I usually don’t talk about because it was hard to come to terms with it. I found courage and...reactions2comments
Storing CF Medication On The GoAs a busy mother, I spend a lot of time multitasking and rushing out the door to some engagement or errand I...reactionscomments
6 Month Trikafta Update (Part 2)I’ve seen so many incredible improvements from Trikafta, as you may have read in Part 1. I expected Trikafta to primarily help...reactionscomments
Becoming Mom: My Path to CF Motherhood (Part 2)My long, winding path to motherhood with cystic fibrosis continues from where we left off last. In case you missed the beginning...reactionscomments
5 Helpful Tips for CaregiversReceiving a cystic fibrosis diagnosis can be a life-altering experience, not only for the person with the diagnosis, but also for the...reactionscomments
Five Summertime Tips for Staying HealthySummertime is like a relieving deep breath for a lot of people in the cystic fibrosis community. During this season, the increased...reactionscomments
Sick All By MyselfIt’s stressful being sick with a genetic disease that causes a wide range of chronic symptoms. It’s even harder being the only...reactionscomments
Planning for Motherhood: Practical ConsiderationsIn part one of this series, I shared some considerations to take into account before deciding to conceive with cystic fibrosis. Focusing...reactionscomments
6 Month Trikafta Update (Part 1)Six months ago I began taking Trikafta--a life-changing treatment for cystic fibrosis. While Trikafta is not a cure, I affectionately refer to...reactionscomments
How Has CF Affected Your Hobbies & Passions?If you or a loved one has CF, you probably know that it can dictate what types of hobbies we can have...reactionscomments
The CF Sibling RelationshipRight now my kids are outside playing together in the sprinkler. I hear them laughing and having a great time out there...reactions3comments
