CF Snacks My Five Year Old LovesI have yet to meet a parent whose child has a perfectly balanced and healthy diet 24/7. Sure, we would love that for our kids, but they also have minds...Reactions0reactionsComments0 comments
Not Enough Hours in the DayMornings are usually the most hectic time in our household. On top of getting ourselves up and ready for work, we also help the girls get dressed, fed, washed up...Reactions0reactionsComments0 comments
National Caregiver Appreciation Month: Thank-You PostcardsWe are excited to participate in National Caregiver Appreciation Month this year, held each year in the month of November. As cystic fibrosis (CF) is a genetic condition and is...Reactions0reactionsComments0 comments
Caregiver Month Self-Care GiveawayThe ______ Giveaway is now closed. Thank you for your interest! November is National Caregiver Month, which means it is time to uplift and celebrate the amazing people in our...Reactions0reactionsComments0 comments
Should I Go For It? Marrying Someone with CF (Part 2)Read Part 1 of Andrew's story: "Should I Go For It? Dating Someone with CF" Has it really been 6 years? Wow, time sure has flown by, and what a...Reactions0reactionsComments0 comments
The Best Response It is always interesting to me how people react when they learn my daughter has cystic fibrosis. After more than 4 years, I still can’t gauge what kind of response...Reactions0reactionsComments0 comments
CF Diagnosis: Then and NowWhen our son was diagnosed 13 years ago, cystic fibrosis was not a disease that my husband and I were familiar with. In all honesty, I had heard it a...Reactions0reactionsComments0 comments
In Defense of Vaccinating Our Son with CFLike with all things regarding parenting, some choices are easier to make than others. Whether it be what school to send your child to or what pediatrician they will see...Reactions0reactionsComments1 comments
It's Ok to ForgetOur Monday was just like any other day. My husband and I woke up and ate breakfast. I had some work to do so I sat in our office, half...Reactions0reactionsComments0 comments
Precautions for Going Back to School this FallSchool is starting soon (too soon!!) and despite most state's Covid numbers, students in many areas will not have the option of going virtual this year. To lessen the likelihood...Reactions0reactionsComments0 comments
The Constant Spiral of Caretaker GuiltOne feeling I was not prepared for when I became a CF caregiver was guilt. Few things can send me spiraling quicker than a perceived sense of guilt for something...Reactions0reactionsComments1 comments
When CF Treatments Become a HassleWhen our son was young, getting him to do his treatments was as simple as putting on YouTube for the 20 minutes of vest and 10 minutes of nebulized medicine...Reactions0reactionsComments0 comments
Returning to Normal As the masks come off and regulations relax around the country, I’ve started to reflect on what the past year has meant for us as a CF family. For the...Reactions0reactionsComments0 comments
Nutritious Ways to Boost Your Toddler's WeightMaintaining a healthy weight is essential for someone with cystic fibrosis. A low BMI is a risk factor in lung function decline and a normal BMI may help reduce the risk...Reactions0reactionsComments0 comments
An Interview With My Son With CFOur son is 12 years old. He has only known life with CF. As much as I try to know how is feeling and what he is thinking about this...Reactions0reactionsComments0 comments
Should I Go For It? Dating Someone with CF (Part 1)Wow! That girl is hot! She is also super cool. She dances, sings, does comedy, she likes a lot of the things that I like...wait, what is this CF thing...Reactions0reactionsComments1 comments
How to Prep Your Home for a CF VisitorWhen my daughter was diagnosed with cystic fibrosis, our friends and family were eager to do everything they could to help us. One of the (surprising) areas they have been...Reactions0reactionsComments1 comments
National Family Caregivers Month Giveaway Terms and ConditionsNO PURCHASE NECESSARY TO ENTER OR WIN. A PURCHASE DOES NOT INCREASE YOUR CHANCES OF WINNING. VOID WHERE PROHIBITED. The $25 Amazon Gift Card Giveaway (the “Promotion”) begins at 9...Reactions0reactionsComments0 comments
Making Connections in the CF CommunityWhen I first had my daughter, one of the things that truly made me feel energized was connecting with other new moms. I met a group of women in our...Reactions0reactionsComments4 comments
Out of NowhereI think you would probably agree with me when I say that being a caregiver to someone with CF is really just going through the motions. There is not much...Reactions0reactionsComments1 comments
