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Read conversations, start a discussion, and connect with others about cystic fibrosis.

excess gas

Since starting Trikafta, it seems like I have excess gas and I mean LOTS of excess gas to the point that me and my husband are not sleeping in the...

Moving to the US with Cystic Fibrosis

Hi, I am a 28 year old female from the UK hoping to move to Florida next year to be with my long term partner. I feel like a fish...

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Being a Parent with CF

Managing a chronic illness can be a lot of work, but adding children to the mix makes it even harder. What is it like to be a parent with CF?...

Vibrating Mesh Nebulizers & Hypertonic Saline?

Howdy. I've been trying to find info from CFers regarding using these vibrating mesh nebulizers with Hypertonic Saline (7%). Anyone use these or have knowledge on which ones work/don't work...

Trikafta

Trikafta nearly killed me. Inside of 3 months I was in total liver failure. I was in and out of the hospital 5 times before going in and staying 42...

How are you preparing for cold and flu season?

What steps do you take to keep yourself healthy during the colder months?...

Teaching Children Self-Management Skills

Teaching young children the skills to manage their CF is imperative for their growth. If you have young children with CF, share tips on ways you've taught them how to...

Kaftrio and stomach pain

When my daughter forgets to take her Kaftrio she gets bad stomach pains. Is this common?...

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Trikafta side effects

I’m a 58 yr old female. I started Trikafta 10 months ago. It has helped diminished my cough completely but I’ve started with a lot of other symptoms. I have...

Orkambi or Trikafta?

Hello, My 14-year-old son has cystic fibrosis. Soon, in Romania, we will benefit from Orkambi and Trikafta medicines. From your experience, do we need to start with Orkambi and then...

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