Kaftrio and stomach painWhen my daughter forgets to take her Kaftrio she gets bad stomach pains. Is this common?...Reactions 0 reactions Comments2 replies
FeaturedTrikafta side effectsI’m a 58 yr old female. I started Trikafta 10 months ago. It has helped diminished my cough completely but I’ve started with a lot of other symptoms. I have...Reactions 0 reactions Comments21 repliesTrikafta
Orkambi or Trikafta?Hello, My 14-year-old son has cystic fibrosis. Soon, in Romania, we will benefit from Orkambi and Trikafta medicines. From your experience, do we need to start with Orkambi and then...Reactions 0 reactions Comments2 repliesDaily TreatmentTrikaftaHealthcare Team
Motivation while constantly getting sickI've been trying to gain some muscle mass, and made encouraging progress. I have a very small stature for a male at 5ft2 19 years with the bone density half...Reactions 0 reactions Comments7 repliesMental HealthTips & AdviceDepression
How has CF impacted your decision to become a parent?CF can impact the ability to conceive children. How did this affect your decisions about conception? Did you pursue alternative methods or choose not to become a parent?...Reactions 0 reactions Comments0 repliesFriends & Family
Five Feet ApartWhile some people loved the movie Five Feet Apart, others were not as impressed. What did you think of this movie? Share your thoughts in the forum. ...Reactions 0 reactions Comments4 repliesAwareness
CF CarrierHi, I’m a CF carrier, I found out 5 years ago when attempting to donate some eggs! I have since had 2 children, no1 (boy) not a CF carrier but...Reactions 0 reactions Comments3 repliesCarriers
Cystic fibrosis adult onset?Hi everyone 🙋🏻♀️just a quick introduction. I am 47 years old and live in the Netherlands. I have severe intestinal complaints and therefore had a colonoscopy, in addition to active...Reactions 0 reactions Comments3 repliesGI SymptomsDiagnosis
Two parents that both have CFI've been searching for this answer but haven't found anything about it available. Is there any research on two Cystic Fibrosis patients having kids together. What I'm wondering, is it...Reactions 0 reactions Comments1 repliesResearch & Clinical Trials
Kaftrio and pseudomonas Hello everyone. I hope all are keeping well. My son started kaftrio a month and a half ago today, he never had any 'purge' as they call it.... Where you...Reactions 0 reactions Comments1 repliesDaily Treatment