Co parentingDoes anyone have any advice on co parenting with a baby with cf? I think she’ll have to live mainly with me...reactions2repliesCaregiving
Blood testsHello so I have to do some blood tests. Long story short, I went to go take my blood tests, and the...reactionsrepliesTips & AdviceSymptomsDiagnosis
What do you wish others knew about being a caregiver or parent to someone with CF?It can be challenging for people to understand what it's like caring for someone with cystic fibrosis. What do you wish others...reactionsreplies
A place to remember...Over the years, many of us have lost loved ones to cystic fibrosis. Share your stories of those who are no longer...reactionsrepliesGrieving
FeaturedDoes anyone remember Sammi's Story by Philippa Manning, 1993!?I am a final year Sociology student with Cystic fibrosis. For one of my modules I am creating a documentary about my...reactions8replies
Texting buddies CF palsAnyone interested in staying connected and becoming friends over time sharing stories and just been a great support for one another and...reactions2repliesCopingDepressionAwareness
Cf group chatsWould there be anyone who wants to group chat about cf and or regular cf lives? Especially the topic of bullying or...reactionsrepliesDepressionDiet & NutritionTips & Advice
My son with CF, CFRD, Neuropathy, and Liver Disease due to cfMy son was 6 months old dianosed with cf. Then the rest of the medical started. He is now 18 yrs old...reactions1replyTrikafta
What are your favorite ways to de-stress?Whether you live with cystic fibrosis or care for someone living with CF, it's normal to feel overwhelmed from time to time...reactions11replies
grievingI recieved a call from my pulmonologist , After discussing what has been happening with my most recent bouts of CF. the...reactions2replies