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Read conversations, start a discussion, and connect with others about cystic fibrosis.

Caregiver Month Forum

What has been your proudest moment as a caregiver to a CF warrior?...

dealing with pain

Having my form of CF has brought alot of problems , Pain has become even more so. I seem to be having more of it each day. I have taken...

What are some of the early symptoms of someone with CF?

CF and Smell

Has CF impacted your or your loved one's sense of smell? Share your experiences with smell in this thread....

Muscle aches & weakness

Just wondering if anyone here , experiences very painful and sore muscles, I have been having alot of muscle pain in my shoulders, and sides especially My shoulde blades are...

Muscle weakness and cramping

Anyone else suffering with muscle weakness and cramping and leg muscle twitches... It's hard exercising when your lungs are saying no but your mind is like yes & barely sleeping...

New port in my arm

Anyone else find them really uncomfortable 😣 and itchy? I've had mine over a month and I've had pain in my arm and chest on and off not to mention...

excess gas

Since starting Trikafta, it seems like I have excess gas and I mean LOTS of excess gas to the point that me and my husband are not sleeping in the...

Moving to the US with Cystic Fibrosis

Hi, I am a 28 year old female from the UK hoping to move to Florida next year to be with my long term partner. I feel like a fish...

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Being a Parent with CF

Managing a chronic illness can be a lot of work, but adding children to the mix makes it even harder. What is it like to be a parent with CF?...

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