Pseudomanas Hi everyone, I have a beautiful 3 year old boy who as contracted this pseudomanas we started nebulized antibiotics in June and we finished them in September 4 weeks after...Reactions 0 reactions Comments2 replies
Working With CFHi everyone, I'm always curious what type of work other people with CF do? Are you able to work from home or have any accommodations? What do you love about...Reactions 0 reactions Comments0 repliesWork & Employment
Trikafta and Brain fog/headachesI am 42yo and began trikafta 3 years ago while in the drug study. I felt amazing at first and bumped up my fev1 from 40's to 60's. I did...Reactions 0 reactions Comments1 repliesTrikafta
The Challenges of Managing CFManaging cystic fibrosis can often require hours of treatment each day, hospital visits, etc. It's extremely challenging to manage CF, even when you're feeling well. Share any tips you have...Reactions 0 reactions Comments3 repliesCopingDaily Treatment
catheter dressing recommendationHi all! As a caregiver, I had to do a lot of trial and error for medical supplies, especially catheter dressings. I came across this medical company based in Korea...Reactions 0 reactions Comments1 repliesCaregivingDaily TreatmentPICC Lines
TelehealthTelehealth is known to increase access to care and reduce costs. Would you ever consider using Telehealth to help manage your CF? Let's talk about it....Reactions 0 reactions Comments1 repliesHealthcare Team
Side effects from digestive enzymes Has anyone had a spouse that has had a digestive reaction ( diarrhea) from being with you?...Reactions 0 reactions Comments1 repliesIntimacySide EffectsGI Symptoms
screening for colon cancerPatients above the age of 40 have a 5 to 10 times higher risk for colon cancer. Screening every 5 years?.......Reactions 0 reactions Comments4 replies
Battery powered travel nebulizerHello - we are looking into battery powered nebulizers. Any favorites? I'm looking at the Pari Trek and the Devilbiss - quite a difference in price between the two for...Reactions 0 reactions Comments2 replies
CF patient writing articles about living with chronic illness, want your insightHello! I am a 26-year-old CF patient, and I am considering writing a series of articles about the experience of those living with chronic or terminal conditions. I think that...Reactions 0 reactions Comments1 repliesDiagnosisAwarenessMental Health
