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pallitive care

As my lung disease has advanced. i was told to seek out pallitive care. which means that my doctors have given up on me . I am not ready to...

told no to lung transplantation

I am a 57 year old woman , who was first diagnoised at the age of 26 with a form of CF Bronchiectasis, w/ immotile cilla dyskenesia. Now that i...

CF Treatment

Which treatments are you (or your child) taking on a day to day basis? (Remember, this is a place to talk about personal experiences, but we ask that you do...

What Excites You Most About 2020?

Share what you're most excited about in the year to come!...

heart damage due to lack of O2

I was wondering if anyone elso out there , has had to go on meds to slow your heart from working too hard due to lack of O2? I have...

Disability

Have you applied for disability? What was the process like for you?...

PICC Line or Port?

Do you have a PICC line or a port? Why did you make this choice? Would you change your decision?...

Getting sick

My son has cf and every time the doctors take him off antibiotics he winds up back in the hospital. Has this happened to anyone else? The doctors don’t know...

Research on a new treatment for lung infections in patients with CF

Hi, I'm from a company doing research into a new, phage-based treatment for lung infections in CF patients and we'd really like to hear about your experiences being treated for...

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