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Read conversations, start a discussion, and connect with others about cystic fibrosis.

Teaching Children Self-Management Skills

Teaching young children the skills to manage their CF is imperative for their growth. If you have young children with CF, share tips on ways you've taught them how to...

Kaftrio and stomach pain

When my daughter forgets to take her Kaftrio she gets bad stomach pains. Is this common?...

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Trikafta side effects

I’m a 58 yr old female. I started Trikafta 10 months ago. It has helped diminished my cough completely but I’ve started with a lot of other symptoms. I have...

Orkambi or Trikafta?

Hello, My 14-year-old son has cystic fibrosis. Soon, in Romania, we will benefit from Orkambi and Trikafta medicines. From your experience, do we need to start with Orkambi and then...

Motivation while constantly getting sick

I've been trying to gain some muscle mass, and made encouraging progress. I have a very small stature for a male at 5ft2 19 years with the bone density half...

How has CF impacted your decision to become a parent?

CF can impact the ability to conceive children. How did this affect your decisions about conception? Did you pursue alternative methods or choose not to become a parent?...

Five Feet Apart

While some people loved the movie Five Feet Apart, others were not as impressed. What did you think of this movie? Share your thoughts in the forum. ...

CF Carrier

Hi, I’m a CF carrier, I found out 5 years ago when attempting to donate some eggs! I have since had 2 children, no1 (boy) not a CF carrier but...

Cystic fibrosis adult onset?

Hi everyone 🙋🏻‍♀️just a quick introduction. I am 47 years old and live in the Netherlands. I have severe intestinal complaints and therefore had a colonoscopy, in addition to active...

Two parents that both have CF

I've been searching for this answer but haven't found anything about it available. Is there any research on two Cystic Fibrosis patients having kids together. What I'm wondering, is it...

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