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Read conversations, start a discussion, and connect with others about cystic fibrosis.

Atypical CF

Hello, Atypical Cystic Fibrosis... I wonder if anyone can help please. I am 46 years old I have had bronchiectasis diagnosed in 2008 by HRCT after suffering symptoms all my...

Pneumonia

Hello. I’m a caregiver for my husband who was hospitalized last week with pneumonia, but he has a new ‘symptom’ that hasn’t happened before - memory loss. They said it...

New diagnosis / Any information / Kaftrio

Hi, my partner and I have just had our first child, (a little boy) and unfortunately he's been diagnosed with CF. He had meconium ileus at birth, very low enzyme...

CF Caregivers

Anyone who cares for a loved one with CF is absolutely incredible. The amount of time they dedicate to their loved one's health and happiness constantly impacts their lives. Let's...

Gut problems

I’m 52, was diagnosed at birth with CF. Last 1.5 years many issues with a regular blockage in left quadrant in intestines. Regularly do magnesium citrate to clean out (...

Cystic Fibrosis and Covid vaccine -15 year old

Hello, I am new to this forum and needed an outlet for my queries. I am the stepmother to a 15 year old boy with cystic fibrosis. His maternal mother...

living with CF as a 17 year old.

I’m 17 and was diagnosed with CF at 3 months old. I have a friend that also has CF and we go to the same school. I’ve known her since...

Kaftrio

Hello, Has anybody who takes kaftrio found they have become very negative, short tempered, low moods. just generally not yourself. I’ve been with my partner for 10yrs who has CF...

sodium chloride and acetlysisteine back ordered and unavailable

I have been out of two of my most needed nebulized medicines. Apparently there is a shortage of both of these and getting them from my pharmacy has been a...

coping with CF

As my CF advances, I notice my limitations. My breathing has become much harder. I now have to use oxygen more often. I am notcing more pain in between my...

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