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Read conversations, start a discussion, and connect with others about cystic fibrosis.

Pseudomanas

Hi everyone, I have a beautiful 3 year old boy who as contracted this pseudomanas we started nebulized antibiotics in June and we finished them in September 4 weeks after...

Working With CF

Hi everyone, I'm always curious what type of work other people with CF do? Are you able to work from home or have any accommodations? What do you love about...

Trikafta and Brain fog/headaches

I am 42yo and began trikafta 3 years ago while in the drug study. I felt amazing at first and bumped up my fev1 from 40's to 60's. I did...

catheter dressing recommendation

Hi all! As a caregiver, I had to do a lot of trial and error for medical supplies, especially catheter dressings. I came across this medical company based in Korea...

Telehealth

Telehealth is known to increase access to care and reduce costs. Would you ever consider using Telehealth to help manage your CF? Let's talk about it....

Side effects from digestive enzymes

Has anyone had a spouse that has had a digestive reaction ( diarrhea) from being with you?...

screening for colon cancer

Patients above the age of 40 have a 5 to 10 times higher risk for colon cancer. Screening every 5 years?.......

Battery powered travel nebulizer

Hello - we are looking into battery powered nebulizers. Any favorites? I'm looking at the Pari Trek and the Devilbiss - quite a difference in price between the two for...

CF patient writing articles about living with chronic illness, want your insight

Hello! I am a 26-year-old CF patient, and I am considering writing a series of articles about the experience of those living with chronic or terminal conditions. I think that...

Making treatments fun

Do you have any creative ways to make treatments feel more exciting and less scary for your child?...

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