Gut problems I’m 52, was diagnosed at birth with CF. Last 1.5 years many issues with a regular blockage in left quadrant in intestines. Regularly do magnesium citrate to clean out (...Reactions 0 reactions Comments1 repliesCoping
Cystic Fibrosis and Covid vaccine -15 year oldHello, I am new to this forum and needed an outlet for my queries. I am the stepmother to a 15 year old boy with cystic fibrosis. His maternal mother...Reactions 0 reactions Comments6 repliesAwarenessCaregiving
living with CF as a 17 year old.I’m 17 and was diagnosed with CF at 3 months old. I have a friend that also has CF and we go to the same school. I’ve known her since...Reactions 0 reactions Comments1 replies
Kaftrio Hello, Has anybody who takes kaftrio found they have become very negative, short tempered, low moods. just generally not yourself. I’ve been with my partner for 10yrs who has CF...Reactions 0 reactions Comments3 replies
sodium chloride and acetlysisteine back ordered and unavailable I have been out of two of my most needed nebulized medicines. Apparently there is a shortage of both of these and getting them from my pharmacy has been a...Reactions 0 reactions Comments1 repliesDaily Treatment
coping with CF As my CF advances, I notice my limitations. My breathing has become much harder. I now have to use oxygen more often. I am notcing more pain in between my...Reactions 0 reactions Comments1 repliesDiagnosisCoping
pallitive careAs my lung disease has advanced. i was told to seek out pallitive care. which means that my doctors have given up on me . I am not ready to...Reactions 0 reactions Comments1 replies
told no to lung transplantationI am a 57 year old woman , who was first diagnoised at the age of 26 with a form of CF Bronchiectasis, w/ immotile cilla dyskenesia. Now that i...Reactions 0 reactions Comments4 replies
CF TreatmentWhich treatments are you (or your child) taking on a day to day basis? (Remember, this is a place to talk about personal experiences, but we ask that you do...Reactions 0 reactions Comments2 repliesDaily Treatment