What do you wish others knew about being a caregiver or parent to someone with CF?It can be challenging for people to understand what it's like caring for someone with cystic fibrosis. What do you wish others knew about your caregiving experience? Share below!...Reactions 0 reactions Comments0 replies
A place to remember...Over the years, many of us have lost loved ones to cystic fibrosis. Share your stories of those who are no longer with us as we celebrate their life and...Reactions 0 reactions Comments0 repliesGrieving
FeaturedDoes anyone remember Sammi's Story by Philippa Manning, 1993!?I am a final year Sociology student with Cystic fibrosis. For one of my modules I am creating a documentary about my experience with CF. I was hoping to include...Reactions 0 reactions Comments8 replies
Texting buddies CF palsAnyone interested in staying connected and becoming friends over time sharing stories and just been a great support for one another and if and when give advice if ever needed...Reactions 0 reactions Comments2 repliesCopingDepressionAwareness
Cf group chatsWould there be anyone who wants to group chat about cf and or regular cf lives? Especially the topic of bullying or lung transplant? Or even if anyone wants any...Reactions 0 reactions Comments0 repliesDepressionDiet & NutritionTips & Advice
My son with CF, CFRD, Neuropathy, and Liver Disease due to cfMy son was 6 months old dianosed with cf. Then the rest of the medical started. He is now 18 yrs old. On Trikafta since Nov 27, 2019. Since on...Reactions 0 reactions Comments1 repliesTrikafta
Please help I need insurance adviceHello, I just got the saddening call yesterday that my transplant clinic is dropping me because my insurance was no longer accepting their clinic. I was devastated to say the...Reactions 0 reactions Comments2 repliesCostLung TransplantInsurance & Disability
What are your favorite ways to de-stress?Whether you live with cystic fibrosis or care for someone living with CF, it's normal to feel overwhelmed from time to time. When feeling stressed or anxious, what are your...Reactions 0 reactions Comments11 replies
grievingI recieved a call from my pulmonologist , After discussing what has been happening with my most recent bouts of CF. the question of wether I could obtain a lung...Reactions 0 reactions Comments2 replies
Helpful friendly advice PLEASE one cf patient to another.Hello everyone. To try to make a long story short, I will try to be as non detailed as possible. This is sort of a question that is bothering me...Reactions 0 reactions Comments2 repliesLung TransplantResearch & Clinical TrialsTips & Advice