Forums

Read conversations, start a discussion, and connect with others about cystic fibrosis.

Active 5 days ago

Person in need

My name is Elizabeth, and I am the mother of a 10-year-old boy diagnosed with Cystic Fibrosis (CF). I reside in Cuba—a...

New to Trikafta-please respond

Hi. I just started taking Trikafta a week ago after the sickest year of my life. I started it while on levaquin...

A place to remember...

Over the years, many of us have lost loved ones to cystic fibrosis. Share your stories of those who are no longer...

Hospital Care

So when I used to go to the hospital to get my IV treatments I always had to be on top of...

Adult Onset Atypical Cystic Fibrosis

In 2005, I had a severe case of black mold bronchitis. I went to a pulmonologist like I thought I should be...

Paxlovid and Trikafta

Has anyone taken Paxlovid for Covid while on Trakafta? Was it worth it?...

Let's Talk Food!

Food is an essential part of life, but it can be a complicated subject when you have CF. What foods do you...

breathing treatments in the car

I have CF, maybe that's obvious on this forum. I'm looking for a device that allows me to do breathing treatments in...

Diagnosed at 62 with CF

Thanks to 23 and me, I discovered I had CF....

My Story

I have lived my life with CF. My eldest brother was born 1960, a failure to thrive. My mom 24, terrified, her...

Categories

Select a category to find topics that interest you.