Did you practice the 6-foot rule before COVID-19?How many of you CF’ers practiced — “5-Feet Apart“ or “ 6-feet apart “, Before COVID — 19?...Reactions0reactionsComments6 replies
Why do you continue to advocate for cystic fibrosis?It's CF awareness month and we want to know why you continue to advocate for cystic fibrosis! Whether it's for yourself or a loved one, we want to hear from...Reactions0reactionsComments2 repliesAwareness
How can I connect with other cftr/crms adults?I’m 36 years old and a professional singer. I fought with a pseudomonas infection in my sinuses for two years before CF was considered. A year ago, my CF results...Reactions0reactionsComments0 replies
The Challenges of Managing CFManaging cystic fibrosis can often require hours of treatment each day, hospital visits, etc. It's extremely challenging to manage CF, even when you're feeling well. Share any tips you have...Reactions0reactionsComments0 repliesCopingDaily Treatment
Have a Question About Clinical Trials? Ask Away!For any questions regarding clinical trials, ask them here....Reactions0reactionsComments0 replies
Does My Husband Have Atypical CF?Does anyone have any experience with atypical cystic fibrosis diagnosed in their late 20s? My husband was recently diagnosed. He has cbavd, major polyp sinus issues (two sinus surgeries in...Reactions0reactionsComments0 repliesDiagnosisCaregiving
Is My Son a Carrier?My grandson has CF, so my question is does this mean my son is a carrier?...Reactions0reactionsComments1 replies
Anyone Out There Dealing With B. Cepacia?How has it affected your inpatient stays? Have a question for the community? Ask here!...Reactions0reactionsComments0 replies
How can malnutrition be prevented in someone with cystic fibrosis?Reactions0reactionsComments1 replies