Building Good Relationships With Our Care TeamsRelationships with our healthcare teams are integral to our health journey. This can feel especially true when living with cystic fibrosis (CF), as the doctors, nurses and other medical professionals...Reactions0reactionsComments0 comments
Our CF Love Story: Part 1Andrew Loebach and Cheriz Kunkel discuss how they met and how cystic fibrosis played a role in their relationship while dating. This is part one from Cheriz’s perspective as someone...Reactions0reactionsComments0 comments
Our CF Love Story: Part 2Watch Part 1 Andrew Loebach and Cheriz Kunkel share their experience on dating and how CF comes into play with their relationship. This is part 2 from Andrew’s perspective on...Reactions0reactionsComments1 comments
How to Grow in Your AdvocacyMany of us in the CF community are well connected on social media and often share our personal experiences battling our illness to bring awareness to CF, facilitate discussion around...Reactions0reactionsComments1 comments
If There Was One Thing I Could Change about HealthcareIn my health journey, I have experienced times when doctors have treated me as though I don’t understand enough about my disease for it to be worthwhile to explain details...Reactions0reactionsComments0 comments
Ways To Infuse IV Antibiotics At HomeStarting IV antibiotics for a CF exacerbation can be a real bummer! It's not always easy to put your life on hold to treat an infection. That's why I choose...Reactions0reactionsComments0 comments
How Being A CF Caregiver Changes Our LivesBeing a caregiver to a loved one with CF inevitably affects the way you live your life. While we love the people we care for, caregiving can still be stressful...Reactions0reactionsComments0 comments
Opening Up About Cystic FibrosisGrowing up I kept my CF hidden from everyone, to me it was a good thing that it was invisible because I was so scared of judgment and what my...Reactions0reactionsComments0 comments
Video: Tour of My Airway Clearance Treatment CartNo two people with CF are alike when it comes to symptoms, course of treatment, and outlook. Something we all have in common--daily airway clearance has to get done! Airway...Reactions0reactionsComments1 comments
Describing The Worst Days With Chronic PainIn September of 2019, Health Union (the parent company of Cystic-Fibrosis.com) partnered with the US Pain Foundation for our first ever Chronic Pain in America survey to ask members of...Reactions0reactionsComments0 comments
How Cystic Fibrosis Affects MeToday I talk about how my cystic fibrosis affects me, from pills and nebulizers to physio and IVs. Here is a brief summary of my personal experience with CF. ...Reactions0reactionsComments0 comments
Living With CF: A Podcast Interview with Megan BarlowI recently spoke with Megan Barlow, one of the contributors here at Cystic-Fibrosis.com, who shared her experiences of life with CF and how she combines treatment, exercise, and her craftwork...Reactions0reactionsComments0 comments
What I Wish People Knew About CFIf you are reading this article, you probably know what cystic fibrosis is. You may have cystic fibrosis yourself and understand what it is like to live with it every...Reactions0reactionsComments0 comments
Video: Advice To Parents Of Newly Diagnosed Kids With CFIt is not easy to learn that your child has CF. Even though the CF community has come a long way in advancements in treatment and care, having a child...Reactions0reactionsComments1 comments
