Forums

Read conversations, start a discussion, and connect with others about cystic fibrosis.

hii

So I got cystic fibrosis and I've always wondered:why can't I smell?? I cant smell anything! it really sucks bc people are...

My breathing and being in pain

I have alots of trouble breathing some days I have to make myself do a little house work but sometimes I think...

Carriers pain, cramping, gas, and constipation diarrhoea kidneys and duct inflamation

My elderly parent in the family with CF ( but has never been tested for carrier status ) As I understand it...

How Old Were You When You Were Diagnosed?

I'm just curious because I was diagnosed when I was only 6 months old, but my brother was diagnosed at 4. So...

Tilting therapy bed for physio for CF

I have a tilting bed supplied specifically for CF physio, but my boys only used it twice as they preferred the wedge...

General friendly question.

How is everyone doing?...

when a cf child reaches 18 and transitions into being an adult

My husband and I would love to hear from parents/caregivers with a CF child transitioning into the adult world. We are nervous...

Trikfta side effects

I’ve been on Trikfta since 2019 and I’ve developed cataracts on both eyes. I’m 41 years old which I was told this...

Will you take our In America survey and help others understand the true impact of cystic fibrosis?

The In America survey is now closed. To better understand the patient experience and realities of living with cystic fibrosis, we are...

Dawn

My daughter Dawn had Cystic-Fibrosis. She was born in Oct of 64, and she lived for 32 years. Dawn passed in May...

Categories

Select a category to find topics that interest you.