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Read conversations, start a discussion, and connect with others about cystic fibrosis.

Orkambi or Trikafta?

Hello, My 14-year-old son has cystic fibrosis. Soon, in Romania, we will benefit from Orkambi and Trikafta medicines. From your experience, do we need to start with Orkambi and then...

New diagnosis / Any information / Kaftrio

Hi, my partner and I have just had our first child, (a little boy) and unfortunately he's been diagnosed with CF. He had meconium ileus at birth, very low enzyme...

Trikafta and Brain fog/headaches

I am 42yo and began trikafta 3 years ago while in the drug study. I felt amazing at first and bumped up my fev1 from 40's to 60's. I did...

I have CF and am pregnant

Let’s share our experiences that can be uniquely nuanced because of managing CF and also new symptoms and changes with pregnancy....

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