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Read conversations, start a discussion, and connect with others about cystic fibrosis.

Cystic fibrosis adult onset?

Hi everyone 🙋🏻‍♀️just a quick introduction. I am 47 years old and live in the Netherlands. I have severe intestinal complaints and therefore had a colonoscopy, in addition to active...

Atypical CF

Hello, Atypical Cystic Fibrosis... I wonder if anyone can help please. I am 46 years old I have had bronchiectasis diagnosed in 2008 by HRCT after suffering symptoms all my...

New diagnosis / Any information / Kaftrio

Hi, my partner and I have just had our first child, (a little boy) and unfortunately he's been diagnosed with CF. He had meconium ileus at birth, very low enzyme...

coping with CF

As my CF advances, I notice my limitations. My breathing has become much harder. I now have to use oxygen more often. I am notcing more pain in between my...

CF patient writing articles about living with chronic illness, want your insight

Hello! I am a 26-year-old CF patient, and I am considering writing a series of articles about the experience of those living with chronic or terminal conditions. I think that...

India lacks facilities , I'd like help

Hi everyone, this is my first time writing on a community forum. I'm vandana , from india. 18 and diagnosed with CF 6ish years ago. I lost my brother to...

Does My Husband Have Atypical CF?

Does anyone have any experience with atypical cystic fibrosis diagnosed in their late 20s? My husband was recently diagnosed. He has cbavd, major polyp sinus issues (two sinus surgeries in...

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