New diagnosis / Any information / KaftrioHi, my partner and I have just had our first child, (a little boy) and unfortunately he's been diagnosed with CF. He had meconium ileus at birth, very low enzyme...Reactions0reactionsComments1 repliesCopingDiagnosisTrikafta
coping with CF As my CF advances, I notice my limitations. My breathing has become much harder. I now have to use oxygen more often. I am notcing more pain in between my...Reactions0reactionsComments1 repliesDiagnosisCoping
CF patient writing articles about living with chronic illness, want your insightHello! I am a 26-year-old CF patient, and I am considering writing a series of articles about the experience of those living with chronic or terminal conditions. I think that...Reactions0reactionsComments1 repliesAwarenessDiagnosisMental Health
India lacks facilities , I'd like helpHi everyone, this is my first time writing on a community forum. I'm vandana , from india. 18 and diagnosed with CF 6ish years ago. I lost my brother to...Reactions0reactionsComments2 repliesDiagnosis
Does My Husband Have Atypical CF?Does anyone have any experience with atypical cystic fibrosis diagnosed in their late 20s? My husband was recently diagnosed. He has cbavd, major polyp sinus issues (two sinus surgeries in...Reactions0reactionsComments0 repliesDiagnosisCaregiving