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Read conversations, start a discussion, and connect with others about cystic fibrosis.

hii

So I got cystic fibrosis and I've always wondered:why can't I smell?? I cant smell anything! it really sucks bc people are like: "oh my gosh that steak smells soooo...

General friendly question.

How is everyone doing?...

CF osteoprosis

Hello, so does anyone else find it so hard to keep your back straight. It's so hard for me because it's so tiring and take so much energy to keep...

CF Care is Awful while struggling with Lungs

I am close to a CFF-approved care center but the care is awful... I was a case number and not much more to them. I tried Trikafta but my liver...

Has anyone ever experienced being left out of a will because you had CF?

Has anyone ever been left out of inheriting anything because you have CF and your relative believe "your just going to pass away any way" or "they aren't long for...

CF Gut

Hi All, I am 61 years old, diagnosed with CF at age 5 and am 20 years post bilateral lung transplant. I have struggled with my gut my whole life...

Texting buddies CF pals

Anyone interested in staying connected and becoming friends over time sharing stories and just been a great support for one another and if and when give advice if ever needed...

Winter with CF

When the temperatures fall, it's not uncommon for anxiety to rise in people with CF. What changes do you make to you or your family's routines in the colder months?...

Far Apart, but Close in Heart

People living with cystic fibrosis are required to stay at least 6-feet apart from each other. Do you make an effort to stay connected with CFers other ways? If so...

New diagnosis / Any information / Kaftrio

Hi, my partner and I have just had our first child, (a little boy) and unfortunately he's been diagnosed with CF. He had meconium ileus at birth, very low enzyme...

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