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Read conversations, start a discussion, and connect with others about cystic fibrosis.

CF Gut

Hi All, I am 61 years old, diagnosed with CF at age 5 and am 20 years post bilateral lung transplant. I have struggled with my gut my whole life...

Texting buddies CF pals

Anyone interested in staying connected and becoming friends over time sharing stories and just been a great support for one another and if and when give advice if ever needed...

Winter with CF

When the temperatures fall, it's not uncommon for anxiety to rise in people with CF. What changes do you make to you or your family's routines in the colder months?...

Far Apart, but Close in Heart

People living with cystic fibrosis are required to stay at least 6-feet apart from each other. Do you make an effort to stay connected with CFers other ways? If so...

New diagnosis / Any information / Kaftrio

Hi, my partner and I have just had our first child, (a little boy) and unfortunately he's been diagnosed with CF. He had meconium ileus at birth, very low enzyme...

Gut problems

I’m 52, was diagnosed at birth with CF. Last 1.5 years many issues with a regular blockage in left quadrant in intestines. Regularly do magnesium citrate to clean out (...

coping with CF

As my CF advances, I notice my limitations. My breathing has become much harder. I now have to use oxygen more often. I am notcing more pain in between my...

The Challenges of Managing CF

Managing cystic fibrosis can often require hours of treatment each day, hospital visits, etc. It's extremely challenging to manage CF, even when you're feeling well. Share any tips you have...

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