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Read conversations, start a discussion, and connect with others about cystic fibrosis.

CF In the elderly

I am newly diagnosed at 69 years old. I’m angry and happy and so emotional. Anyone my age with CF?...

cystic fibrosis and celiac disease

Please help. My 20 year old daughter has CF and celiac but is struggling with digestive issues. The availability of creon 35...

My son Joshua

Cf took my beloved child at 27 yrs 8 yrs ago. I still suffer & cry....

Creon availability

Hi all. In South Africa some of us are beginning to hear rumblings about a shortage of Creon. Are people in South...

Diagnosis Shock

I have recently been diagnosed with late onset CF. I spent the first week trying to get my head around the news...

What are some tips to gain weight on Trikafta

Hello everybody! So I have a rare mutation that Trikafta wasn’t approved for, but my doctor took a chance on me and...

Atypical

I was diagnosed with atypical CF which has caused male infertility due to lack of vas deferens. Was told as a kid...

Hair loss

I'm a woman in my 40s with CF. I'm on a modulator. Recently I have started having my hair fall out. It's...

Things I've Experienced as a Carrier

Through 23 and me I know I am a CF carrier. I know it came from my mother's side. My primary care...

Finding Out I'm A CF Carrier

I was diagnosed as a CF carrier about 5 years ago after my son, and daughter-in-law had genetic testing when she became...

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