Forums

Read conversations, start a discussion, and connect with others about cystic fibrosis.

Working With CF

Hi everyone, I'm always curious what type of work other people with CF do? Are you able to work from home or...

Trikafta and Brain fog/headaches

I am 42yo and began trikafta 3 years ago while in the drug study. I felt amazing at first and bumped up...

catheter dressing recommendation

Hi all! As a caregiver, I had to do a lot of trial and error for medical supplies, especially catheter dressings. I...

Telehealth

Telehealth is known to increase access to care and reduce costs. Would you ever consider using Telehealth to help manage your CF?...

Side effects from digestive enzymes

Has anyone had a spouse that has had a digestive reaction ( diarrhea) from being with you?...

screening for colon cancer

Patients above the age of 40 have a 5 to 10 times higher risk for colon cancer. Screening every 5 years?.......

Battery powered travel nebulizer

Hello - we are looking into battery powered nebulizers. Any favorites? I'm looking at the Pari Trek and the Devilbiss - quite...

CF patient writing articles about living with chronic illness, want your insight

Hello! I am a 26-year-old CF patient, and I am considering writing a series of articles about the experience of those living...

Making treatments fun

Do you have any creative ways to make treatments feel more exciting and less scary for your child?...

CF & COVID-19

Now that more people have been vaccinated, how are you feeling about returning to a more normal lifestyle? Does anyone feel ready...

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