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Read conversations, start a discussion, and connect with others about cystic fibrosis.

Moving to the US with Cystic Fibrosis

Hi, I am a 28 year old female from the UK hoping to move to Florida next year to be with my long term partner. I feel like a fish...

Vibrating Mesh Nebulizers & Hypertonic Saline?

Howdy. I've been trying to find info from CFers regarding using these vibrating mesh nebulizers with Hypertonic Saline (7%). Anyone use these or have knowledge on which ones work/don't work...

Orkambi or Trikafta?

Hello, My 14-year-old son has cystic fibrosis. Soon, in Romania, we will benefit from Orkambi and Trikafta medicines. From your experience, do we need to start with Orkambi and then...

Kaftrio and pseudomonas

Hello everyone. I hope all are keeping well. My son started kaftrio a month and a half ago today, he never had any 'purge' as they call it.... Where you...

Lifetime of Hill Rom Vest

Hi everyone, I am new at this forum and could not find any topic about Hill Rom Vest 105 system which is a crucial part of our daily care. What...

sodium chloride and acetlysisteine back ordered and unavailable

I have been out of two of my most needed nebulized medicines. Apparently there is a shortage of both of these and getting them from my pharmacy has been a...

CF Treatment

Which treatments are you (or your child) taking on a day to day basis? (Remember, this is a place to talk about personal experiences, but we ask that you do...

Getting sick

My son has cf and every time the doctors take him off antibiotics he winds up back in the hospital. Has this happened to anyone else? The doctors don’t know...

catheter dressing recommendation

Hi all! As a caregiver, I had to do a lot of trial and error for medical supplies, especially catheter dressings. I came across this medical company based in Korea...

CF & COVID-19

Now that more people have been vaccinated, how are you feeling about returning to a more normal lifestyle? Does anyone feel ready to return back to their life before COVID? ...

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