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Read conversations, start a discussion, and connect with others about cystic fibrosis.

Just a Day in My Life Struggling Physically and Mentally

Hi, I joined this forum last year but until now I don't think I have posted anything about myself. I have talked...

Seeking Urgent Help and Guidance for My Brother

My younger brother, Nikunj, who is 18 years old, has been battling cystic fibrosis (CF) since he was diagnosed at the age...

Chit chat

Well it's 2025 & it's been a long time since I were last on here and I've gone thru so much in...

Benefits PIP

Whilst having CF is there only two benefits you can claim i.e p.i.p and ESA or is there other things and grants...

Newbie´s questions

Hello good day,im newbie! Do you have pain in your neck or near your neck? Which doctor diagnosed the disease? Did your...

Seeking perspectives on genetic engineering and cystic fibrosis

Good evening, I hope it’s okay to post this here—apologies if not! I’m a second-year college student working on a research project...

Medicine in Israel

Does anyone know if Pulmozyme and TOBI are available for sale in Israel? Any idea of cost since will be paying out...

Please help I need insurance advice

Hello, I just got the saddening call yesterday that my transplant clinic is dropping me because my insurance was no longer accepting...

How many of you do IV antibiotics at home?

It’s a subject that differs with a lot of patients especially those living in the states when it comes to insurance (I’m...

Best centers for Atypical Adult Onset Diagnosis

I am a 50 year old with gradual symptoms of CF and a genetic sequencing test showing 2 extremely rare genes that...

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