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Read conversations, start a discussion, and connect with others about cystic fibrosis.

weight loss

15 year old all of sudden started lossing weight never loss weight before weights 153 was weighting 159...

EXPLORING CYSTIC FIBROSIS: GASTROINTESTINAL CHALLENGES, MENTAL HEALTH IMPACTS, AND INNOVATIVE TREATMENTS"

Cystic fibrosis (CF) is a hereditary rather inheritable mess and disturbance that exert influence on several organs. First and foremost the lungs...

Best types of digestive enzymes

I’m a VF carrier and have pancreatic insufficiency. I haven’t been able to resolve my digestive issues fully with prescription enzymes (tried...

hii

So I got cystic fibrosis and I've always wondered:why can't I smell?? I cant smell anything! it really sucks bc people are...

My breathing and being in pain

I have alots of trouble breathing some days I have to make myself do a little house work but sometimes I think...

Carriers pain, cramping, gas, and constipation diarrhoea kidneys and duct inflamation

My elderly parent in the family with CF ( but has never been tested for carrier status ) As I understand it...

How Old Were You When You Were Diagnosed?

I'm just curious because I was diagnosed when I was only 6 months old, but my brother was diagnosed at 4. So...

Tilting therapy bed for physio for CF

I have a tilting bed supplied specifically for CF physio, but my boys only used it twice as they preferred the wedge...

General friendly question.

How is everyone doing?...

New to Trikafta-please respond

Hi. I just started taking Trikafta a week ago after the sickest year of my life. I started it while on levaquin...

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