Forums

Read conversations, start a discussion, and connect with others about cystic fibrosis.

Funds for Needy People

Hi, This is Jay, my daughter is 12th grader raised funds to use equipment donation or treatment care for Cystic Fibrosis. could...

CF Care is Awful while struggling with Lungs

I am close to a CFF-approved care center but the care is awful... I was a case number and not much more...

Trikafta side effects

Hi, Just curious on who has had to stop trikafta and what your side effects were on the medication and how you...

Carrier plus allele - what am I called?

Hi all - I hope this question isn’t too obvious. Searching has failed me. I’m a CF carrier with one full CFTR...

Do You Know That Your Experience With CF Matters?

Seriously, it does! When you share your personal CF experience, you help others learn more about what life is like living with...

Trikafta coverage

Hi. I'm on Trikafta and since my job changed prescription plans, my Trikafta is a 4000.00 copay. I have good health insurance...

Getting older with cf

I'm nearly 46 Every1 is talking about my 50th The doc told my dad when I was born she won't get to...

Has anyone ever experienced being left out of a will because you had CF?

Has anyone ever been left out of inheriting anything because you have CF and your relative believe "your just going to pass...

Disruptive Behavior

11 year old granddaughter has over the course of the last year developed narcissistic and disruptive behavior. In some cases hurting others...

CF Gut

Hi All, I am 61 years old, diagnosed with CF at age 5 and am 20 years post bilateral lung transplant. I...

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