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Does anyone remember Sammi's Story by Philippa Manning, 1993!?

I am a final year Sociology student with Cystic fibrosis. For one of my modules I am creating a documentary about my...

Texting buddies CF pals

Anyone interested in staying connected and becoming friends over time sharing stories and just been a great support for one another and...

Cf group chats

Would there be anyone who wants to group chat about cf and or regular cf lives? Especially the topic of bullying or...

My son with CF, CFRD, Neuropathy, and Liver Disease due to cf

My son was 6 months old dianosed with cf. Then the rest of the medical started. He is now 18 yrs old...

What are your favorite ways to de-stress?

Whether you live with cystic fibrosis or care for someone living with CF, it's normal to feel overwhelmed from time to time...

grieving

I recieved a call from my pulmonologist , After discussing what has been happening with my most recent bouts of CF. the...

Helpful friendly advice PLEASE one cf patient to another.

Hello everyone. To try to make a long story short, I will try to be as non detailed as possible. This is...

Meds

Hi all. I found out Thursday my LG has cf. She is 6 weeks old. We now have her creon, parafit we...

Sweat

I don't understand why I sweat so much . I can get up trying to clean and I get to sweating having...

My Amazing Sister with CF

My sister battled CF like a trooper for 52 years! She was my hero and was so hard to say goodbye two...

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