PneumoniaHello. I’m a caregiver for my husband who was hospitalized last week with pneumonia, but he has a new ‘symptom’ that hasn’t...reactions1replyCaregivingSymptoms
New diagnosis / Any information / KaftrioHi, my partner and I have just had our first child, (a little boy) and unfortunately he's been diagnosed with CF. He...reactions1replyCopingDiagnosisTrikafta
CF CaregiversAnyone who cares for a loved one with CF is absolutely incredible. The amount of time they dedicate to their loved one's...reactions2replies
Gut problems I’m 52, was diagnosed at birth with CF. Last 1.5 years many issues with a regular blockage in left quadrant in intestines...reactions1replyCoping
Cystic Fibrosis and Covid vaccine -15 year oldHello, I am new to this forum and needed an outlet for my queries. I am the stepmother to a 15 year...reactions6repliesAwarenessCaregiving
living with CF as a 17 year old.I’m 17 and was diagnosed with CF at 3 months old. I have a friend that also has CF and we go...reactions1reply
Kaftrio Hello, Has anybody who takes kaftrio found they have become very negative, short tempered, low moods. just generally not yourself. I’ve been...reactions3replies
sodium chloride and acetlysisteine back ordered and unavailable I have been out of two of my most needed nebulized medicines. Apparently there is a shortage of both of these and...reactions1replyDaily Treatment
coping with CF As my CF advances, I notice my limitations. My breathing has become much harder. I now have to use oxygen more often...reactions1replyDiagnosisCoping