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Read conversations, start a discussion, and connect with others about cystic fibrosis.

Curious 🤔

I've seen a post on here saying marijuana/ I mean do CF people smoke that stuff and doesn't it effect them even...

Trikafta (Kaftrio) causing Bad Memory Loss?

Hi, I have been on Trikafta from June 2021. My lung function has went up 20%, and I generally feel a lot...

Co parenting

Does anyone have any advice on co parenting with a baby with cf? I think she’ll have to live mainly with me...

Blood tests

Hello so I have to do some blood tests. Long story short, I went to go take my blood tests, and the...

What do you wish others knew about being a caregiver or parent to someone with CF?

It can be challenging for people to understand what it's like caring for someone with cystic fibrosis. What do you wish others...

A place to remember...

Over the years, many of us have lost loved ones to cystic fibrosis. Share your stories of those who are no longer...

Featured

Does anyone remember Sammi's Story by Philippa Manning, 1993!?

I am a final year Sociology student with Cystic fibrosis. For one of my modules I am creating a documentary about my...

Texting buddies CF pals

Anyone interested in staying connected and becoming friends over time sharing stories and just been a great support for one another and...

Cf group chats

Would there be anyone who wants to group chat about cf and or regular cf lives? Especially the topic of bullying or...

My son with CF, CFRD, Neuropathy, and Liver Disease due to cf

My son was 6 months old dianosed with cf. Then the rest of the medical started. He is now 18 yrs old...

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